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  • Restless

    04 July 2012 ( #My Health )

    Well its 2am and I cannot sleep even though I am so exhausted! Many people reading this can relate to this feeling but the majority of Kidney patients will probably understand a little better about the next bit. Every now and again I get what is known...

  • It's Been a while

    13 March 2013 ( #random )

    I can't believe it was September when I last wrote, shows how quickly time flies and so where do I start. Jasmine started school and absolutely loves it. She even achieved the headmasters gold star award in her school in the first term, we are so proud...

  • 4/4/11

    04 April 2011 ( #My Health )

    I was still ill this morning so chris had to get Jaz ready for nursery and then i just drove there and he took her in. Spent the day relaxing then went on dialysis this evening. Needles painful as usual so I had to use the smaller 15g ones but still managed...

  • Stress

    09 May 2013 ( #My Health )

    It has been a while since I last blogged but quite a lot has been going on and it has been difficult finding the time plus because I have felt under so much stress the blog probably would have been so negative anyway. Firstly my role as a trustee for...

  • New Chapter = New friends

    01 July 2013 ( #My Health )

    The past few weeks have been quite agonising as my fistula has hurt like hell when needling. The dopla scan came back clear which was a huge relief but then I got a letter from the hospital telling me I had got to go in for a fistulogram/plasty. This...

  • Operation fear

    15 June 2011 ( #random )

    Hi.. So tomorrow is finally D Day and i am having an operation on my fistula. The last one was cancelled so all being well this will go ahead. The nerves have kicked in now and just hoping all goes well. If the operation works then im hoping to not get...

  • Brief overview

    25 March 2011 ( #My Health )

    I have been on Haemo dialysis since 2004 when i started with acute renal failure due to aHUS. I had an unsuccesful transplant in 2006 due to the aHUS being recurrent and in effect 'killing' the kidney in a matter of weeks and therefore have not been put...

  • Finally!

    26 July 2011 ( #My Health )

    Well I have finally got both button hole needles in and have also increased my session to 5 times a week. Can't say i actually feel any better for it at the moment but i am sure my blood results will. Its less than one week now till we go away to Bournemouth...

  • aHUS in the press

    30 May 2011 ( #My Health )

    Well due to a family berevament we had to go away for a couple of days but struggled to get fluid off before we went away so wasn't sure if i would manage to go the extra day without dialysis. As it stood i didnt manage it and had to come back a day early,...

  • Post Op

    03 July 2011 ( #My Health )

    Had op a couple of weeks ago now and it really did hurt this time. I had to have 5 times the normal amount of local anasthetic as the pain was too much and I could still feel it. Didn't manage to stretch the narrowing as much as the surgeon wanted but...

  • About time..will it last?

    15 April 2011 ( #My Health )

    Dialysed on Thursday and boy did i need a good session after the terrible previous one. I had extra fluid on and just felt 'crap' for lack of a better word. So this session i managed the bigger needles, got my normal pump speed, increased dialysate flow...

  • ALREADY???

    07 February 2014

    Hello Everyone.. So I said I would start 2014 as positive as possible and this is definitely the way forward so much as happened in such a short space of time already. Last year I decided to start a project about making a mini movie about patients on...

  • TRANSPLANT DATE!

    11 March 2014

    Well tomorrow I go to Birmingham for my clerking ready for the transplant. I finally got my date for the 21st March. I will have my bloods taken and meet the surgeon and they have offered to show me around the ward where I will be going. I will start...

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Présentation

  • : livelifelisa
  • : I decided to write a blog about my life on dialysis. Originally there was no option of a transplant due to a rare genetic disease but all this changed. I want people to try and understand what myself and my family go through, not just the bad times but the good as well. Hope you enjoy my story!!
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