I decided to write a blog about my life on dialysis. Originally there was no option of a transplant due to a rare genetic disease but all this changed. I want people to try and understand what myself and my family go through, not just the bad times but the good as well. Hope you enjoy my story!!
I can't believe it was September when I last wrote, shows how quickly time flies and so where do I start. Jasmine started school and absolutely loves it. She even achieved the headmasters gold star award in her school in the first term, we are so proud...
Read moreHi.. So tomorrow is finally D Day and i am having an operation on my fistula. The last one was cancelled so all being well this will go ahead. The nerves have kicked in now and just hoping all goes well. If the operation works then im hoping to not get...
Read moreWell im finally back from the long awaited conference on aHUS and it was really interesting and even come back with some positive news. The drug Ecluziumab i have spokedn about before was mentioned in detail but rather than try and explain it all it basically...
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