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        <title><![CDATA[livelifelisa]]></title>
        <link>https://livelifelisa.over-blog.com/</link>
        <generator>Overblog - https://www.over-blog.com</generator>
        <description><![CDATA[I decided to write a blog about my life on dialysis. Originally there was no option of a transplant due to a rare genetic disease but all this changed. I want people to try and understand what myself and my family go through, not just the bad times but the good as well. Hope you enjoy my story!!]]></description>
                    <item>
    <title><![CDATA[New Lease of Life]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/2015/10/new-lease-of-life.html]]></link>
    <guid>https://livelifelisa.over-blog.com/2015/10/new-lease-of-life.html</guid>
    <pubDate>Sat, 31 Oct 2015 19:53:00 +0100</pubDate>
    <description><![CDATA[Saturday night and stuck at home = great time to update my blog!! Firstly I had the results back from my fine needle test and it was benign, never felt so relieved. Although I didn't actually receive any results it was just mentioned in a passing comment... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Where Have I Been???]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/2015/09/where-have-i-been.html]]></link>
    <guid>https://livelifelisa.over-blog.com/2015/09/where-have-i-been.html</guid>
    <pubDate>Tue, 01 Sep 2015 21:37:51 +0200</pubDate>
    <description><![CDATA[I am so sorry it has been so long since I have updated my blog. Firstly Kevin is doing well, bloods are stable and I am keeping well. My calcium levels are still too high and i have had to have tests to see if I need the operation which I have dreaded... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Happy 1st Year Kevin!]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/2015/03/happy-1st-year-kevin.html]]></link>
    <guid>https://livelifelisa.over-blog.com/2015/03/happy-1st-year-kevin.html</guid>
    <pubDate>Sun, 22 Mar 2015 20:58:53 +0100</pubDate>
    <description><![CDATA[I have left it way too long to create an update. As Kevin the kidney has reached his first official 1 year anniversary I thought this would be a great time to crack on with it. My first Christmas with Chris and Jasmine with no dialysis was amazing, no... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Post 6 months!]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/2014/11/post-6-months.html]]></link>
    <guid>https://livelifelisa.over-blog.com/2014/11/post-6-months.html</guid>
    <pubDate>Thu, 13 Nov 2014 22:40:15 +0100</pubDate>
    <description><![CDATA[I was meant to update my blog at 6 months but I have been so busy that it totally slipped my mind. Clinic has now been moved to monthly which is great news. I had to go back to the doctors about my ears but they finally prescribed me something and after... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[4 month mark]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-4-month-mark-124327929.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-4-month-mark-124327929.html</guid>
    <pubDate>Fri, 08 Aug 2014 17:41:00 +0200</pubDate>
    <description><![CDATA[Hi So the 4 month mark has been and gone and my oh my can I see a change. I have gone from attending clinic twice a week to once a week and my Eculizumab is fortnightly. Eventually If I remain stable my clinic appointments will be even less often, the... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[9 Weeks post transplant]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-9-weeks-post-transplant-124327908.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-9-weeks-post-transplant-124327908.html</guid>
    <pubDate>Fri, 08 Aug 2014 17:38:00 +0200</pubDate>
    <description><![CDATA[It's now 9 weeks post transplant and I think I have felt every emotion possible. Out of these 9 weeks I have spent more time in hospital than out and I just feel so frustrated. I went to normal clinic to see the consultant and wasn't feeling fantastic... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Coming through the other end!!]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-coming-through-the-other-end-123205588.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-coming-through-the-other-end-123205588.html</guid>
    <pubDate>Thu, 03 Apr 2014 13:40:00 +0200</pubDate>
    <description><![CDATA[So its Thursday 20th March and I have just rang the Queen Elizabeth (QE) hospital in Birmingham to check they have a bed to make my way down. They have told me to come straight down and go to the dialysis ward, so far so good. Traffic isn't too bad and... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[TRANSPLANT DATE!]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-transplant-date-122919726.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-transplant-date-122919726.html</guid>
    <pubDate>Tue, 11 Mar 2014 21:03:00 +0100</pubDate>
    <description><![CDATA[Well tomorrow I go to Birmingham for my clerking ready for the transplant. I finally got my date for the 21st March. I will have my bloods taken and meet the surgeon and they have offered to show me around the ward where I will be going. I will start... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[ALREADY???]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-already-122452246.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-already-122452246.html</guid>
    <pubDate>Fri, 07 Feb 2014 19:30:00 +0100</pubDate>
    <description><![CDATA[Hello Everyone.. So I said I would start 2014 as positive as possible and this is definitely the way forward so much as happened in such a short space of time already. Last year I decided to start a project about making a mini movie about patients on... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Bring on 2014!]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-bring-on-2014-121919296.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-bring-on-2014-121919296.html</guid>
    <pubDate>Sun, 05 Jan 2014 22:03:00 +0100</pubDate>
    <description><![CDATA[Well another year has passed and I'm still here! Managed to visit in the In laws for a couple of days, had a quiet Christmas and even managed a couple of days away for the New Year. One of the things I do not look forward too is New Years eve so this... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Best news in the world, probably?]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-best-news-in-the-world-probably-120994141.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-best-news-in-the-world-probably-120994141.html</guid>
    <pubDate>Thu, 07 Nov 2013 00:39:00 +0100</pubDate>
    <description><![CDATA[As usual I have left it a while since my last blog. Anyway lets start with the news we have waited so long for. On the 11th September 2013 we finally got the news that patients who are on dialysis and are fit enough can have the drug Eculizumab funded...... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[All is well]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-all-is-well-119395651.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-all-is-well-119395651.html</guid>
    <pubDate>Sun, 04 Aug 2013 23:36:00 +0200</pubDate>
    <description><![CDATA[Well the date finally arrived for my fistulagram and I was a little nervous to say the least even though I have had the procedure several times before. BP was extremely high and it didn't help matters that when I got to theatre my usual surgeon was not... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[New Chapter = New friends]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-new-chapter-118837271.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-new-chapter-118837271.html</guid>
    <pubDate>Mon, 01 Jul 2013 22:18:00 +0200</pubDate>
    <description><![CDATA[The past few weeks have been quite agonising as my fistula has hurt like hell when needling. The dopla scan came back clear which was a huge relief but then I got a letter from the hospital telling me I had got to go in for a fistulogram/plasty. This... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Stress]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-stress-117684510.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-stress-117684510.html</guid>
    <pubDate>Thu, 09 May 2013 21:29:00 +0200</pubDate>
    <description><![CDATA[It has been a while since I last blogged but quite a lot has been going on and it has been difficult finding the time plus because I have felt under so much stress the blog probably would have been so negative anyway. Firstly my role as a trustee for... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[It's Been a while]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-it-s-been-a-while-116136872.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-it-s-been-a-while-116136872.html</guid>
    <pubDate>Wed, 13 Mar 2013 03:49:00 +0100</pubDate>
    <description><![CDATA[I can't believe it was September when I last wrote, shows how quickly time flies and so where do I start. Jasmine started school and absolutely loves it. She even achieved the headmasters gold star award in her school in the first term, we are so proud... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Won't be long (hopefully)]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-won-t-be-long-hopefully-109633509.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-won-t-be-long-hopefully-109633509.html</guid>
    <pubDate>Sat, 01 Sep 2012 14:53:00 +0200</pubDate>
    <description><![CDATA[Since I last wrote a few different things have been going on in my life. Firstly and most importantly we are still waiting for the decision on Eculizumab ( the drug I need to have a transplant), we were hoping to get this before parliament went to summer... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Restless]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-restless-107749366.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-restless-107749366.html</guid>
    <pubDate>Wed, 04 Jul 2012 03:05:00 +0200</pubDate>
    <description><![CDATA[Well its 2am and I cannot sleep even though I am so exhausted! Many people reading this can relate to this feeling but the majority of Kidney patients will probably understand a little better about the next bit. Every now and again I get what is known... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Refreshed]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-refreshed-107272311.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-refreshed-107272311.html</guid>
    <pubDate>Thu, 21 Jun 2012 21:52:00 +0200</pubDate>
    <description><![CDATA[Had a great time in Crete and could definitely have stayed for a lot longer but isn't that always the way with holidays. The weather was perfect , the food was great and Jasmine loved her first time abroad. As usual the dialysis centre was perfect with... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Where Are We At?]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-where-are-we-at-103427564.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-where-are-we-at-103427564.html</guid>
    <pubDate>Sat, 14 Apr 2012 22:03:00 +0200</pubDate>
    <description><![CDATA[The last time I wrote my blog I had sent in an appeal to the DWP as they wanted me to get back into work as yet they are still making a decision so I am still nervous about this and can't wait for it to get sorted. My medication has finally come to an... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Pleurisy &amp; Parliament]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-pleurisy-parliament-97970174.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-pleurisy-parliament-97970174.html</guid>
    <pubDate>Thu, 26 Jan 2012 22:05:00 +0100</pubDate>
    <description><![CDATA[Sorry I have not wrote for a while but quite a bit has been going on. Had a lovely Christmas but did end up in hospital for a day with suspected pneumonia and pleurisy. Managed to be discharged two days before Christmas on antibiotics and bed rest. Found... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Its been a While]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-its-been-a-while-89544906.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-its-been-a-while-89544906.html</guid>
    <pubDate>Tue, 22 Nov 2011 20:26:00 +0100</pubDate>
    <description><![CDATA[Well its been a while since i last updated my blog but i tend not to write blogs when im not thinking too positively. There is an e-petition for getting the funding for the drug i need in order to have a transplant and so far we have reached over 1000... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Holidays = happy times]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-holidays-happy-times-83735159.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-holidays-happy-times-83735159.html</guid>
    <pubDate>Thu, 08 Sep 2011 21:00:00 +0200</pubDate>
    <description><![CDATA[Well we went to Bournemouth for a week camping with friends and the weather was so so hot it was like being abroad. The dialysis unit there has 3 stations and is run by Kris and Geraldine who are a married couple and are wonderful. They were so accomodating... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Finally!]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-finally-80269630.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-finally-80269630.html</guid>
    <pubDate>Tue, 26 Jul 2011 21:33:00 +0200</pubDate>
    <description><![CDATA[Well I have finally got both button hole needles in and have also increased my session to 5 times a week. Can't say i actually feel any better for it at the moment but i am sure my blood results will. Its less than one week now till we go away to Bournemouth... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
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                    <item>
    <title><![CDATA[Post Op]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-post-op-78518938.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-post-op-78518938.html</guid>
    <pubDate>Sun, 03 Jul 2011 22:58:00 +0200</pubDate>
    <description><![CDATA[Had op a couple of weeks ago now and it really did hurt this time. I had to have 5 times the normal amount of local anasthetic as the pain was too much and I could still feel it. Didn't manage to stretch the narrowing as much as the surgeon wanted but... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
    </item>
                    <item>
    <title><![CDATA[Operation fear]]></title>
    <link><![CDATA[https://livelifelisa.over-blog.com/article-operation-fear-76838427.html]]></link>
    <guid>https://livelifelisa.over-blog.com/article-operation-fear-76838427.html</guid>
    <pubDate>Wed, 15 Jun 2011 22:32:00 +0200</pubDate>
    <description><![CDATA[Hi.. So tomorrow is finally D Day and i am having an operation on my fistula. The last one was cancelled so all being well this will go ahead. The nerves have kicked in now and just hoping all goes well. If the operation works then im hoping to not get... ]]></description>
        <dc:creator><![CDATA[livelifelisa]]></dc:creator>
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