I decided to write a blog about my life on dialysis. Originally there was no option of a transplant due to a rare genetic disease but all this changed. I want people to try and understand what myself and my family go through, not just the bad times but the good as well. Hope you enjoy my story!!
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Saturday night and stuck at home = great time to update my blog!! Firstly I had the results back from my fine needle test and it was benign, never felt so relieved. Although I didn't actually receive any results it was just mentioned in a passing comment...
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I am so sorry it has been so long since I have updated my blog. Firstly Kevin is doing well, bloods are stable and I am keeping well. My calcium levels are still too high and i have had to have tests to see if I need the operation which I have dreaded...
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I have left it way too long to create an update. As Kevin the kidney has reached his first official 1 year anniversary I thought this would be a great time to crack on with it. My first Christmas with Chris and Jasmine with no dialysis was amazing, no...
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I was meant to update my blog at 6 months but I have been so busy that it totally slipped my mind. Clinic has now been moved to monthly which is great news. I had to go back to the doctors about my ears but they finally prescribed me something and after...
Read moreHi So the 4 month mark has been and gone and my oh my can I see a change. I have gone from attending clinic twice a week to once a week and my Eculizumab is fortnightly. Eventually If I remain stable my clinic appointments will be even less often, the...
Read moreIt's now 9 weeks post transplant and I think I have felt every emotion possible. Out of these 9 weeks I have spent more time in hospital than out and I just feel so frustrated. I went to normal clinic to see the consultant and wasn't feeling fantastic...
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So its Thursday 20th March and I have just rang the Queen Elizabeth (QE) hospital in Birmingham to check they have a bed to make my way down. They have told me to come straight down and go to the dialysis ward, so far so good. Traffic isn't too bad and...
Read moreWell tomorrow I go to Birmingham for my clerking ready for the transplant. I finally got my date for the 21st March. I will have my bloods taken and meet the surgeon and they have offered to show me around the ward where I will be going. I will start...
Read moreHello Everyone.. So I said I would start 2014 as positive as possible and this is definitely the way forward so much as happened in such a short space of time already. Last year I decided to start a project about making a mini movie about patients on...
Read moreWell another year has passed and I'm still here! Managed to visit in the In laws for a couple of days, had a quiet Christmas and even managed a couple of days away for the New Year. One of the things I do not look forward too is New Years eve so this...
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